Being chronically ill but wanting to make a difference: the balance.

Three years ago today, I spent my day in a traditional Lakota sweat lodge. Two days prior, I had walked away from my corporate job with zero fallback plan. Already in the midst of a major autoimmune crash, I was also doing work that was breaking my soul. I had been hired as the wellnessContinue reading “Being chronically ill but wanting to make a difference: the balance.”

What it’s like to watch people die from your disease.

My immune system attacked my body when I was 10, resulting in a loss of ability to make a crucial hormone called insulin, which turns the food you eat into fuel for your body. Without insulin, the sugar from your food compounds in your blood stream, quickly poisoning you from within. Before 1921, this eventContinue reading “What it’s like to watch people die from your disease.”

Being chronically ill in the age of resistance.

I’m worn out. Mentally. Physically. Drained. Not more than anyone else. I get the times we’re living through right now. None of this is normal. We’re all feeling depleted. It’s in a different way. Beyond the emotional and mental burden of everything happening in the United States right now, my immune system has been firing at insaneContinue reading “Being chronically ill in the age of resistance.”

13 months without health insurance: a pre-existing condition nightmare

By now, you’ve heard that two nights ago, while the country slept, the Senate voted against measures that would keep key provisions of the Affordable Care Act in place. I believe this is short-sighted and dangerous, potentially leading to millions of Americans losing their healthcare coverage. I chose to write to my local congressional representative, andContinue reading “13 months without health insurance: a pre-existing condition nightmare”

Does my disease make me a burden?

I’m in Barbados with my best friend, riding shotgun in her mom’s Jeep, guiding my hand and arm to ride a wave of air out the window as we jet down the highway from the west coast back to her family’s house in the south. It’s the last day of my holiday stay and we’ve beenContinue reading “Does my disease make me a burden?”

19 years.

Today marks 19 years since my type 1 diabetes diagnosis. It’s meant a lot of needles. Guesswork when my life is on the line. Lost sleep. Insurance fights and ignorant doctors. Fear. An incredible weight that threatens to break me sometimes because this thing that so deeply affects my life and my well-being and my future is never going away.